Joyful Oct, pals!
I hope you have all experienced a superb start off to fall and are making the most of the cooler temperatures and stunning slide times.
I’m popping in these days with a new Dominic update. Thank you all so significantly for your emails, the cards and presents that you have despatched, and all of the prayers you have supplied up our loved ones appreciates it all so pretty considerably ❤️
The Newest Solutions and Scans
Right after Labor Day, Dominic experienced his 2nd spherical of immunotherapy procedure, adopted up by a new set of scans and a bone marrow biopsy in mid-September.
We got quite encouraging news… the scan showed that 50% of the cancer has cleared, which is the largest go of the needle that we have noticed so significantly.
The entire-body radioactive scan done for neuroblastoma is called an MIBG scan and it is presented a “Curie score” – 10 segments of the body are scored to 3, primarily based on how substantially most cancers is present, which suggests the maximum score it can show is 30. In Might, Dominic’s rating was 27 right after surgical procedures and prior to beginning immunotherapy, his rating was 26. Just after the second round of immunotherapy, this most latest scan confirmed a score of 13.
His bone marrow biopsy confirmed what the health care provider termed “just a trace” of neuroblastoma cells, a reduction from the previous 5 to 10%.
We pray that the immunotherapy solutions keep on to be this efficient and that he will soon be totally cleared of the cancer that remains.
Dominic will have his 3rd round of immunotherapy the week right after future, and then the fourth spherical about a thirty day period immediately after that, adopted by a further set of scans.
Immunotherapy, as opposed to chemotherapy, does not trigger white counts, platelets, or hemoglobin to drop, so we really do not have to stress about 2 times-weekly lab function or transfusions. We just require to go into clinic after a week to have his central line dressing improved.
In the Meantime…
Dominic begun kindergarten final week! It has made my coronary heart so content to see him savoring standard 5-year-aged daily life, displaying us the papers he’s worked on, and chatting about the minor points that have occurred in the course of the day.
Following shelling out the final six months likely back again and forth from hospitals, inpatient stays for chemotherapy, surgical procedure, infinite clinic visits, transfusions, radiation, and every little thing in between, getting some normalcy in everyday life has been this sort of a blessing for him.
AND he turns 6 this 7 days! 🎉
You may possibly have witnessed a few of new e-mails from me this last 7 days! Thank you so a great deal for the awesome comments!
I’m slowly commencing to get again into the swing of items and with a slightly more predictable program at home, I’m hoping to deliver again Friday Items and send out you delectable recipes on a semi-frequent foundation again. Continue to be tuned 😋